4 Weeks
Well I can easily say the worst is behind me and I am well on my way to a full recovery. I was able to get a full night's sleep last night and looking forward to a day without having to take a nap. My energy level is almost back to normal and I have settled in on a weight a few pounds shy of where I started but what seems optimal for me right now.
My INR number is hovering around 2.1 which is a bit below the desired 2.5 to 3.5 range but I might be one of those that requires the max dosage of Coumadin each day. Another check on Monday along with the required Echocardiogram to see if my Ejection Fraction is back up to the recommended 55-60%. If so then I should get clearance to start back running. I must admit that on Sunday as a birthday gift to myself, while I was out for a 4 mile fast pace walk, I did jog on and off. It felt great but I could tell that the current medications I am taking had some negative effects on my performance.
I am currently taking Beta Blockers and Ace Inhibitors to lower my blood pressure and slow my heart rate to enhance the healing effects for my heart but the down side is when you ask for more output from the heart it is if the heart has a governor and no matter what it will not go above 90 beats a minute. So you have to be real careful or you can get dizzy or even pass out if you over do it. I meet with my Cardiologist next Friday and hope that my Echo looks good and he can start to cut me back on the Meds and let me return to my normal exercise routine.
As I pilot I love numbers and here are some for reference.
28 days since my AVR surgery
190 days that I have completed 30 minutes of exercise each day. That would include 3, 10 minute walks in the halls the day after my surgery and including a 5K race I walked on the 4th of July in 45 minutes.
79 days until the Berlin Marathon which I am on track to complete. I might need the entire 6 hour and 15 minute time limit to complete but I have yet to DNF, did not finish, a race I started.
Last but not least, because of this new valve, which by now I can hardly ever hear click closed,
360 days until my 60th birthday.
Thanks to all of you that have followed me along the journey. I have decided to update less frequently unless there is a grand milestone along the way. I appreciate everyones' support and well wishes but it is getting real close to getting back to the work a day world and all the fun stuff that goes along with it. If all goes as planned I will be returning to work in two weeks. I hope I adjust well to getting back into the routine but if not I guess others will have to adjust to me.
I realize that this is an over used phrase but after having 8 different holes in me at once not including the Mini Zipper and the whole heart stop and restarted reality.
LIFE IS TOO SHORT
Tony
Thursday, July 10, 2014
Tuesday, July 1, 2014
Two weeks post AVR surgery
Two weeks post AVR surgery
Time does fly when you are having fun or when you are on the other side of surgery. I do remember how slow the days went by in preparation for surgery.
My health seems to be improving just as expected. I am now having many more great hours than just okay or bad hours.
I am now able to take two walks a day for a total of 2 miles and my pain as it were is under complete control by just two doses of Tylenol, regular strength, a day. I am still unable to sleep all night and require only one nap during the day. That desire for a nap hits me like a ton of bricks. On minute I can be wide awake and the next I can't keep my eyes open. Still can't sleep on my side or stomach as before.
My INR took a dip yesterday to 1.7 so they have upped the amount of Coumadin to 10mg for yesterday and Sunday with another finger prick scheduled for Monday. I was able to talk to the nurse and also received information in the mail about a portable testing unit so after 90 days I will be able to do it myself at home or on the road.
I must admit the blood thinning situation is a bit worrisome but I am sure we will get the number steady in the 2.5-3.5 range in awhile. In an effort to help move the number in the right direction I will cut out all salads for the time being. It does seem counter intuitive but I can simple replace those veggies for others. I also noticed that my Centrum Silver over 50 men formula has Vitamin K, 200% of vitamin C and and E. The B-Complex that I have been taking also has 500% of C. CoQ10 is also on the do not take list even though the hospital had it on their approved list of vitamins for me. I will have to go back to the drawing board on my vitamin selections and be more careful as I move forward.
My numerous entry and exit points including the MZ, mini zipper are all healing nicely and only have an occasional cracking sensation of the chest wall during my daily activities. I was happy while in the hospital not to actually hear the clicking noise of the valve but now that I am home while I am trying to sleep I can hear it. I guess the noise of the AC system while in the hospital was able to drown it out. No big deal, I will now just put some music on while going to sleep and understand after awhile I will adjust. It is much better than the sound of the murmur just prior to surgery and I was able to get use to it.
Going to try to go some extra distance on the walking this weekend. On Saturday going to try a two mile walk with a 20 minute a mile of faster pace. Sunday up the distance to 3 miles but at the same pace. Along the route I will make sure there will be somewhere I can cop a squat if necessary half way thru. I was able to get 1.75 in during my morning walk in 30 minutes so all is well on the exercise front. It still stings a bit when I see someone run by me but I will wait until I get clearance from my Cardiologist when I go see him on the 18th of July.
My weight is coming back at a rate of 1/2 pound a day. Have to be careful since one sign of heart problems is putting on 3-5 pounds in a short period of time. That is a sign that ones heart is in trouble and starting to take on water. So much to do and remember. Good thing I don't have to go back to work for awhile. Actually I could not imagine trying to do my job in my current condition. I guess I will get a good idea when that might be when I go see my Cardiologist. The only other question to answer is what hoops I will have to jump through to get my FAA Medical back so that I can continue flying once I get back to work.
Tony
Time does fly when you are having fun or when you are on the other side of surgery. I do remember how slow the days went by in preparation for surgery.
My health seems to be improving just as expected. I am now having many more great hours than just okay or bad hours.
I am now able to take two walks a day for a total of 2 miles and my pain as it were is under complete control by just two doses of Tylenol, regular strength, a day. I am still unable to sleep all night and require only one nap during the day. That desire for a nap hits me like a ton of bricks. On minute I can be wide awake and the next I can't keep my eyes open. Still can't sleep on my side or stomach as before.
My INR took a dip yesterday to 1.7 so they have upped the amount of Coumadin to 10mg for yesterday and Sunday with another finger prick scheduled for Monday. I was able to talk to the nurse and also received information in the mail about a portable testing unit so after 90 days I will be able to do it myself at home or on the road.
I must admit the blood thinning situation is a bit worrisome but I am sure we will get the number steady in the 2.5-3.5 range in awhile. In an effort to help move the number in the right direction I will cut out all salads for the time being. It does seem counter intuitive but I can simple replace those veggies for others. I also noticed that my Centrum Silver over 50 men formula has Vitamin K, 200% of vitamin C and and E. The B-Complex that I have been taking also has 500% of C. CoQ10 is also on the do not take list even though the hospital had it on their approved list of vitamins for me. I will have to go back to the drawing board on my vitamin selections and be more careful as I move forward.
My numerous entry and exit points including the MZ, mini zipper are all healing nicely and only have an occasional cracking sensation of the chest wall during my daily activities. I was happy while in the hospital not to actually hear the clicking noise of the valve but now that I am home while I am trying to sleep I can hear it. I guess the noise of the AC system while in the hospital was able to drown it out. No big deal, I will now just put some music on while going to sleep and understand after awhile I will adjust. It is much better than the sound of the murmur just prior to surgery and I was able to get use to it.
Going to try to go some extra distance on the walking this weekend. On Saturday going to try a two mile walk with a 20 minute a mile of faster pace. Sunday up the distance to 3 miles but at the same pace. Along the route I will make sure there will be somewhere I can cop a squat if necessary half way thru. I was able to get 1.75 in during my morning walk in 30 minutes so all is well on the exercise front. It still stings a bit when I see someone run by me but I will wait until I get clearance from my Cardiologist when I go see him on the 18th of July.
My weight is coming back at a rate of 1/2 pound a day. Have to be careful since one sign of heart problems is putting on 3-5 pounds in a short period of time. That is a sign that ones heart is in trouble and starting to take on water. So much to do and remember. Good thing I don't have to go back to work for awhile. Actually I could not imagine trying to do my job in my current condition. I guess I will get a good idea when that might be when I go see my Cardiologist. The only other question to answer is what hoops I will have to jump through to get my FAA Medical back so that I can continue flying once I get back to work.
Tony
There is no place like home
There is no place like home
Especially if you have completed the once in a life time Hospital Endurathon.
Glad I trained for the event and was rather young. Got a PR, personal record, first time out and do not ever plan on doing another one.
Usually I get a medal and T-Shirt on such endurance events. In this case my heart pillow will substitute as the T-Shirt and my brand new On-X #27-29 mechanical valve will serve as my medal.
There were a number of things I never thought I would learn.
Not in any particular order.
How to snap and tie a hospital gown with one arm hooked up to an IV.
How to ask for more hospital food.
That I would lose 10 pounds in a week without dieting.
Judge the blood draw staff on promptness, courtesy and overall effectiveness.
I even got out of bed and asked why the 4 am stick was running late.
Over a dozen ways to tell someone that what was going to happen was going to hurt all while smiling.
How to escape in my mind from a hospital.
The chopper daily and nightly schedule.
The importance of having fresh spare noise cancellation headphone batteries.
What INR, International Normalized Ratio, stands for and how it's movement varies widely from person to person.
That the surgeon that you have is always the best one on staff.
It is quicker to go from fully dressed to ready for open heart surgery than to go from hospital gown to your car on discharge.
How great sunsets really look.
How sweet the words "wake up" can sound.
That being cold is relative but being hot is unbearable
How to operate a multifunction hospital bed with one hand with eye shades on.
That pain is truly temporary.
How great the sound of two beeps after hitting the pain pump in ICU is.
That it is harder to forget what you don't want to remember than you thought.
That your heart is pretty smart and after surgery it knows that it is now time to get some rest all by itself
That I would fear being at home not hooked up to all the machines.
This one caused a panic attack on the first night at home.
The trip home wore me out and got all the information to when call their 24/7 number and when to call 911.
Blood pressure and heart rate were both up and my entire chest and left shoulder blade hurt.
The spiral began. Did they let me go to soon,etc? After nearly two weeks of being tested, observed, monitored etc it was now time for me to figure it out all by myself. I had read stories of others ending up at the ER and I feared that was where I was headed. Sleep deprivation did not help matters. I managed to calm down took two Tylenols and crashed for 10 hours.
Felt much better yesterday and hope that I am well on my way to recovery. I am sure there will be some twists and turns along the way. I have read how people decided when to go back to work. Right now I am figuring that if I can't run then I should not subject others to a hostile work environment.
Went to get my blood checked today and my INR number was 2.1 with a goal of 2.5 to 3.5. Only a drop of blood from my finger was needed so my arms were very happy.
While there I scheduled my 7 day post op with my GP and my 4 week post op Echo and office visit with my Cardiologist. Hopefully by then my heart will no longer need the rest and that my Injection Fraction is back to near 60% as before surgery.
Only decision to be made now. Second half of World Cup soccer or Nap Time.
Tony
Especially if you have completed the once in a life time Hospital Endurathon.
Glad I trained for the event and was rather young. Got a PR, personal record, first time out and do not ever plan on doing another one.
Usually I get a medal and T-Shirt on such endurance events. In this case my heart pillow will substitute as the T-Shirt and my brand new On-X #27-29 mechanical valve will serve as my medal.
There were a number of things I never thought I would learn.
Not in any particular order.
How to snap and tie a hospital gown with one arm hooked up to an IV.
How to ask for more hospital food.
That I would lose 10 pounds in a week without dieting.
Judge the blood draw staff on promptness, courtesy and overall effectiveness.
I even got out of bed and asked why the 4 am stick was running late.
Over a dozen ways to tell someone that what was going to happen was going to hurt all while smiling.
How to escape in my mind from a hospital.
The chopper daily and nightly schedule.
The importance of having fresh spare noise cancellation headphone batteries.
What INR, International Normalized Ratio, stands for and how it's movement varies widely from person to person.
That the surgeon that you have is always the best one on staff.
It is quicker to go from fully dressed to ready for open heart surgery than to go from hospital gown to your car on discharge.
How great sunsets really look.
How sweet the words "wake up" can sound.
That being cold is relative but being hot is unbearable
How to operate a multifunction hospital bed with one hand with eye shades on.
That pain is truly temporary.
How great the sound of two beeps after hitting the pain pump in ICU is.
That it is harder to forget what you don't want to remember than you thought.
That your heart is pretty smart and after surgery it knows that it is now time to get some rest all by itself
That I would fear being at home not hooked up to all the machines.
This one caused a panic attack on the first night at home.
The trip home wore me out and got all the information to when call their 24/7 number and when to call 911.
Blood pressure and heart rate were both up and my entire chest and left shoulder blade hurt.
The spiral began. Did they let me go to soon,etc? After nearly two weeks of being tested, observed, monitored etc it was now time for me to figure it out all by myself. I had read stories of others ending up at the ER and I feared that was where I was headed. Sleep deprivation did not help matters. I managed to calm down took two Tylenols and crashed for 10 hours.
Felt much better yesterday and hope that I am well on my way to recovery. I am sure there will be some twists and turns along the way. I have read how people decided when to go back to work. Right now I am figuring that if I can't run then I should not subject others to a hostile work environment.
Went to get my blood checked today and my INR number was 2.1 with a goal of 2.5 to 3.5. Only a drop of blood from my finger was needed so my arms were very happy.
While there I scheduled my 7 day post op with my GP and my 4 week post op Echo and office visit with my Cardiologist. Hopefully by then my heart will no longer need the rest and that my Injection Fraction is back to near 60% as before surgery.
Only decision to be made now. Second half of World Cup soccer or Nap Time.
Tony
Rehab in the hospital
Rehab in the Hospital
Not exactly what I had planned but I will take this delicious dish on a silver platter any and every day as opposed to the alternative. My INR numbers are slowly climbing and I actually got 5 hours of sleep last night during 3 well timed naps. I did dream each time so I was glad to know that I was able to reach deep sleep.
I did not realize how much I took sleep for granted. I would get in bed watch a little TV and off to sleep I would go. I did not have to set an alarm because I knew that 7 hours later I would be waking up.
Something else that was pointed out by an comment to one of my posts is how I underestimated the how the lack of endorphins was going to effect me. I simply thought that if I was able to get out and walk the halls a dozen times a day for a total of an hour or so that I would be okay.
NOT
With those pieces of valuable information I will now be able to understand as to why I am not my totally positive self. What I am going thru is simply temporary and right now is somewhat out of control. However my attitude is something I can control and I am going to start working what I can control more, look to the future more, and stop dwelling on the present and the past.
Yesterday the manager of the floor saw me out walking with my favorite running shoes on and suggested that I go to the Rehab facility near by my room today and I am like a kid waiting for my parents to wake me up on Christmas morning. They are open from 10- Noon so have my entire day planned around being able to go and maybe even take my heart rate up a notch or two. My original rehab plan was to wait until after I got home and then sign up with the local hospital after a week so this is great news.
It was as good as I had hoped. With my vitals up on a screen for the folks to review and Blood pressure taken every 5 minutes I was able to get in a slow walk for 20 minutes straight and around 6/10's of a mile. I now have a goal for tomorrow. Do a little bit better. My heart rate drooped a bit after my mid day nap and blood pressure is also more in line with what it was prior to surgery. Icing on the cake will be an afternoon walk on the roof top lounge. Oh happy day.
It did not matter that it was 90 degrees out the fresh air was worth its weight in gold.
I had some fun when a chopper landed near by so I imagined they dropped in to pick me up and get me out on the day that I had originally hoped. I did have a good laugh with that one. During the time on the roof I was also able to reflect on the fact that only one week ago I had the major of all major surgeries and by all accounts I am doing great.
Decided to name my scar MZ for Mini Zipper so you can tell that my positive attitude is back in full bloom. Thanks to all that have read my ramblings and that have sent me much needed words of encouragement. I also look forward to read the stories of success, setback, sidesteps, etc of others that have gone down this road or by those that will be soon be hearing the sweet sounds of the words, wake up because in reality you were only sleeping.
Now for something to think about for those that have their date set and are now counting down the days. Here at the Cleveland Clinic they give you an online password to what they call Guided Imagery. I also went online and found a great meditation application called, take a break! Meditation Oasis. I highly recommend both. With Guided Imagery they have several different meditation sessions. One for general use for you or family members and also one pre operation and one post operation. I found the pre operation sessions particularly helpful. It asks you to think of the perfect experience that is easy to remember and just prior to surgery while they are hooking you up go to that happy place. It really works. When asked my level of stress while getting ready for surgery on the scale of 0-10, I was easily able to answer ZERO.
Thanks
Tony
Not exactly what I had planned but I will take this delicious dish on a silver platter any and every day as opposed to the alternative. My INR numbers are slowly climbing and I actually got 5 hours of sleep last night during 3 well timed naps. I did dream each time so I was glad to know that I was able to reach deep sleep.
I did not realize how much I took sleep for granted. I would get in bed watch a little TV and off to sleep I would go. I did not have to set an alarm because I knew that 7 hours later I would be waking up.
Something else that was pointed out by an comment to one of my posts is how I underestimated the how the lack of endorphins was going to effect me. I simply thought that if I was able to get out and walk the halls a dozen times a day for a total of an hour or so that I would be okay.
NOT
With those pieces of valuable information I will now be able to understand as to why I am not my totally positive self. What I am going thru is simply temporary and right now is somewhat out of control. However my attitude is something I can control and I am going to start working what I can control more, look to the future more, and stop dwelling on the present and the past.
Yesterday the manager of the floor saw me out walking with my favorite running shoes on and suggested that I go to the Rehab facility near by my room today and I am like a kid waiting for my parents to wake me up on Christmas morning. They are open from 10- Noon so have my entire day planned around being able to go and maybe even take my heart rate up a notch or two. My original rehab plan was to wait until after I got home and then sign up with the local hospital after a week so this is great news.
It was as good as I had hoped. With my vitals up on a screen for the folks to review and Blood pressure taken every 5 minutes I was able to get in a slow walk for 20 minutes straight and around 6/10's of a mile. I now have a goal for tomorrow. Do a little bit better. My heart rate drooped a bit after my mid day nap and blood pressure is also more in line with what it was prior to surgery. Icing on the cake will be an afternoon walk on the roof top lounge. Oh happy day.
It did not matter that it was 90 degrees out the fresh air was worth its weight in gold.
I had some fun when a chopper landed near by so I imagined they dropped in to pick me up and get me out on the day that I had originally hoped. I did have a good laugh with that one. During the time on the roof I was also able to reflect on the fact that only one week ago I had the major of all major surgeries and by all accounts I am doing great.
Decided to name my scar MZ for Mini Zipper so you can tell that my positive attitude is back in full bloom. Thanks to all that have read my ramblings and that have sent me much needed words of encouragement. I also look forward to read the stories of success, setback, sidesteps, etc of others that have gone down this road or by those that will be soon be hearing the sweet sounds of the words, wake up because in reality you were only sleeping.
Now for something to think about for those that have their date set and are now counting down the days. Here at the Cleveland Clinic they give you an online password to what they call Guided Imagery. I also went online and found a great meditation application called, take a break! Meditation Oasis. I highly recommend both. With Guided Imagery they have several different meditation sessions. One for general use for you or family members and also one pre operation and one post operation. I found the pre operation sessions particularly helpful. It asks you to think of the perfect experience that is easy to remember and just prior to surgery while they are hooking you up go to that happy place. It really works. When asked my level of stress while getting ready for surgery on the scale of 0-10, I was easily able to answer ZERO.
Thanks
Tony
Good news and not so good news
Good news not so good news
I don't want to use the term bad news but in this case my hopes of being able to leave the hospital tomorrow have been dashed. The good news is that I had my heart pacing wires removed today. They were actually up against the heart and are used to either increase or decrease ones heart rate. They did not actually have to use them but were there just in case.
My heart rate has been a very steady 70 or so beats per minute however is about 15 beats faster than it was pre-operation. I guess I will either have to adjust to the new resting rate or work on it, when able to start running again. Blood pressure is in the high normal range so they also have me on Beta Blockers to bring it down. My usual level of exercise will also help to keep it in the normal range.
Now the not so good news. My INR number, the International Normalized Ratio, is normal for a person without a mechanical valve. Right now it is 1.1 but the blood clotting factor needs to be between 2-3. The blood thinner, Coumadin or as we see on TV a lot warfarin, has not kicked in yet so I will be hooked back up to an Heparin IV for awhile to help get the number up. Needles to say I cannot leave the hospital until they get the number to the acceptable range. There are a number of precautions while taking Coumadin, which I will have to do for the rest of my life, but still feel that they are worth not ever having to do this again.
Right now just taking it one day at a time and will always remember when the nurse asked me to wake up and I realized I was alive. Actually your hearing is the first to come back and clear vision the last so when I heard her I first thought they were trying to bring me back to life but realized that they simply wanted me to wake up so I could breath on my own.
I don't want to use the term bad news but in this case my hopes of being able to leave the hospital tomorrow have been dashed. The good news is that I had my heart pacing wires removed today. They were actually up against the heart and are used to either increase or decrease ones heart rate. They did not actually have to use them but were there just in case.
My heart rate has been a very steady 70 or so beats per minute however is about 15 beats faster than it was pre-operation. I guess I will either have to adjust to the new resting rate or work on it, when able to start running again. Blood pressure is in the high normal range so they also have me on Beta Blockers to bring it down. My usual level of exercise will also help to keep it in the normal range.
Now the not so good news. My INR number, the International Normalized Ratio, is normal for a person without a mechanical valve. Right now it is 1.1 but the blood clotting factor needs to be between 2-3. The blood thinner, Coumadin or as we see on TV a lot warfarin, has not kicked in yet so I will be hooked back up to an Heparin IV for awhile to help get the number up. Needles to say I cannot leave the hospital until they get the number to the acceptable range. There are a number of precautions while taking Coumadin, which I will have to do for the rest of my life, but still feel that they are worth not ever having to do this again.
Right now just taking it one day at a time and will always remember when the nurse asked me to wake up and I realized I was alive. Actually your hearing is the first to come back and clear vision the last so when I heard her I first thought they were trying to bring me back to life but realized that they simply wanted me to wake up so I could breath on my own.
No rest for the weary
No Rest for the weary
No sleep in stepdown for that matter. I expected to be up after the operation in ICU but had no idea how difficult it was going to be to get a good night sleep while in step down in my hospital room.
I am not much of a day sleeper so catching an hour nap is about all I can muster. I usually get 7-8 hours of sleep a night and I am a very light sleeper so the nightly rounds are starting to catch up with me. Two things I have noticed is a headache that won't go away and I am a bit cranky.
Here is the routine between 10pm and 8am
Oral medication plus a stick to the belly at 10pm
Vitals check at 11pm
More meds thru a intravenous line at 12am
Someone sticks their head in and asks how am I doing at 1am
Vitals at 3am
Someone checks 4 am
Blood draw at 5 am
More meds thru intravenous line at 6am
Vitals at 7 am
More oral meds plus shot to belly a 8am
That does not include the several times I have to get up to use the rest room. All fluids in or out most be measured.
I asked for a sleep aide last night so at least instead of staying awake between pokes and prods I was able to fall back to sleep most times. That helped the headache and hopefully I will return to my cheerful self after a nap sometime today.
I also should have tried to sleep on my back prior to this operation. That is a required skill. Needless to say I am a side or belly sleeper which I have not been able to pull off yet. Before hand I could only sleep on my right side since my murmur had gotten so loud it would reverberate off my ribs and keep me awake or wake me me up if I turned that way.
You live and you learn but hope to never have to use this experience again.
Tony
No sleep in stepdown for that matter. I expected to be up after the operation in ICU but had no idea how difficult it was going to be to get a good night sleep while in step down in my hospital room.
I am not much of a day sleeper so catching an hour nap is about all I can muster. I usually get 7-8 hours of sleep a night and I am a very light sleeper so the nightly rounds are starting to catch up with me. Two things I have noticed is a headache that won't go away and I am a bit cranky.
Here is the routine between 10pm and 8am
Oral medication plus a stick to the belly at 10pm
Vitals check at 11pm
More meds thru a intravenous line at 12am
Someone sticks their head in and asks how am I doing at 1am
Vitals at 3am
Someone checks 4 am
Blood draw at 5 am
More meds thru intravenous line at 6am
Vitals at 7 am
More oral meds plus shot to belly a 8am
That does not include the several times I have to get up to use the rest room. All fluids in or out most be measured.
I asked for a sleep aide last night so at least instead of staying awake between pokes and prods I was able to fall back to sleep most times. That helped the headache and hopefully I will return to my cheerful self after a nap sometime today.
I also should have tried to sleep on my back prior to this operation. That is a required skill. Needless to say I am a side or belly sleeper which I have not been able to pull off yet. Before hand I could only sleep on my right side since my murmur had gotten so loud it would reverberate off my ribs and keep me awake or wake me me up if I turned that way.
You live and you learn but hope to never have to use this experience again.
Tony
No Pain no Gain
No pain no gain
Being a runner you hear that a lot. However going thru this I must say that for now I have actually had no pain. Some discomfort from time to time but I have managed to be able answer, zero when asked about my level of pain. Sort of worrisome since I expect to creep up me at anytime as the drug dosage is deceased. I am truly learning to be a patient patient.
Just finished a 10 minute walk around the area and think I might do another loop in a few but a doubt it since I don't want to overdo it.
I did learn something after surgery and that is, there are several ways to replace my valve and I was completely wrong on what I thought was going to occur. It is my fault since I really did not want to know how the sausage was made. I figured they were the experts so just went with the flow. My surgeon said he was going to do a mini incision and I thought that meant I was getting Minimal J Incision Aortic Valve Replacement Surgery. That was crack pot research on my part before hand.
In my mind I thought it was a horizontal incision right below the breast bone or port access. We had discussed 2 months ago full median sternotomy which is vertical now the chest. Turns out he was talking about minimally invasive sternotomy which is about 1/3 the size. So far so good but I did learn a valuable lesson when it comes to your body. If you have any doubt keep asking questions until the doubt is completely gone. I usually go with the thrust hut verify approach but lent more on the trust side. No harm no foul on this part since it all worked out in the end.
Tony
Being a runner you hear that a lot. However going thru this I must say that for now I have actually had no pain. Some discomfort from time to time but I have managed to be able answer, zero when asked about my level of pain. Sort of worrisome since I expect to creep up me at anytime as the drug dosage is deceased. I am truly learning to be a patient patient.
Just finished a 10 minute walk around the area and think I might do another loop in a few but a doubt it since I don't want to overdo it.
I did learn something after surgery and that is, there are several ways to replace my valve and I was completely wrong on what I thought was going to occur. It is my fault since I really did not want to know how the sausage was made. I figured they were the experts so just went with the flow. My surgeon said he was going to do a mini incision and I thought that meant I was getting Minimal J Incision Aortic Valve Replacement Surgery. That was crack pot research on my part before hand.
In my mind I thought it was a horizontal incision right below the breast bone or port access. We had discussed 2 months ago full median sternotomy which is vertical now the chest. Turns out he was talking about minimally invasive sternotomy which is about 1/3 the size. So far so good but I did learn a valuable lesson when it comes to your body. If you have any doubt keep asking questions until the doubt is completely gone. I usually go with the thrust hut verify approach but lent more on the trust side. No harm no foul on this part since it all worked out in the end.
Tony
Ready to go
Ready to go
Had a great 3 mile walk this morning after a very restful 7 hours of sleep.
It might be awhile before I can get back to walking that distance but I I have learned that I will need to be a patient patient.
My body is going to need to heal and if I over do it that would not prove to be very productive in the long run.
I am ready and have prepared myself as best as humanly possible.
I guess I won't need this anymore.
2 hours and 41 minutes remaining until AVR
But I will now look forward to this one.
107 days and 15 hours remaining until Berlin Marathon.
Tony
Had a great 3 mile walk this morning after a very restful 7 hours of sleep.
It might be awhile before I can get back to walking that distance but I I have learned that I will need to be a patient patient.
My body is going to need to heal and if I over do it that would not prove to be very productive in the long run.
I am ready and have prepared myself as best as humanly possible.
I guess I won't need this anymore.
2 hours and 41 minutes remaining until AVR
But I will now look forward to this one.
107 days and 15 hours remaining until Berlin Marathon.
Tony
Great News
Great news
Met with everyone today and got clearance for my surgery tomorrow.
All the test showed clean arteries and great blood work. Also it was decided that I will only need Minimal J Incision Aortic Valve Replacement Surgery. I still need to be flexible just in case. The plan now is for me to report at 10am. With 2 hour prep and 5 hour surgery followed up with 2 hours of recovery I should be all done around 7pm. They gave me plenty of advance warning that things could change so I will need to be patient.
Thanks
Tony
Met with everyone today and got clearance for my surgery tomorrow.
All the test showed clean arteries and great blood work. Also it was decided that I will only need Minimal J Incision Aortic Valve Replacement Surgery. I still need to be flexible just in case. The plan now is for me to report at 10am. With 2 hour prep and 5 hour surgery followed up with 2 hours of recovery I should be all done around 7pm. They gave me plenty of advance warning that things could change so I will need to be patient.
Thanks
Tony
Clear for Takefoff
Pure skill and determination
That was part of my canned answer when someone would say "Good Luck" to me.
Luck has nothing to do with it. It takes pure skill and determination was always my answer.
I have decided to modify that answer when someone says good luck about my up coming operation. In this case it will be pure skill by the entire team at the Cleveland Clinic and determination by me.
As you might have noticed I have a tendency to compare a lot of life lessons to running a marathon. When trying to complete a marathon I feel 90% is mental. Your perpetration, training and planning is important but your body is trying in every way to tell you to stop but your mind must convince your body to continue. In this case I have decided to take this operation to my advantage and come out of it stronger and better than before. The modern advantages of medicine will be used in this case to help fight off the disadvantage of getting older. We all know that as time marches on cells just don't replicate as they use to but In my case I will have a faulty valve replaced by a brand new one that will easily out live me.
I saw on the news this morning that a 91 year old woman had set a new record for completing a marathon at that age. My plan is not to break any records but after this operation I can now be the best that I can be. No more worrying about my heart. Just think what I can now accomplish without the distraction and use the 90% mental power to my advantage in all aspects of my life.
With one week left I will now transfer my thoughts to not the surgery and recovery but more so what what I want to do with myself when I am now better than ever. So much left to do. So many goals to set and mark off as time passes on.
Putting my thoughts down on paper for all interested parties to read has proven to be very theraputic. Not sure how it will work out on the other side but you can be sure I will not simply tell you that I walked around the block. I have had folks that I don't even know leave me messages of encouragement along with tidbits of advice.
One guy gave me a name of a book that he read that proved helpful, by the name of Living Life to the Full. I am not much of a book reader but this one is planned to be finished before my surgery. It is about a woman that had done many triathlons and always wanted to do the ultimate triathlon which is the Iron Man event. An Iron Man triathlon is started with a 2.4 mile swim in open water, 112 mike bike ride and finish with a 26.2 mile marathon. Her goal was to do that 8 months after her surgery. I completed an Iron Man event back in 2012 and did some calculations. My goal is to finish the Berlin Marathon 3 months after my surgery which is approximately 1/3 of what she was able to achieve. So in my mind that should be an achievable goal.
On the other side of the coin some coworkers gave me another book to read, called The Last Train to Paradise.
I love a good laugh and I am still laughing about this one.
It is a story about a rail system that was built down on the Florida Keys but I am sure I will not hurt anyone feelings if it simply remains on the coffee table as a conversation piece. It is somewhat appropriate since I always try to live my life to the fullest as if it was my Last Train to Paradise.
Here is quote that I do live by.
Hunter Thompson wrote: "Life should not be a journey to the grave with the intention of arriving safely in a pretty and well preserved body, but rather to skid in broadside in a cloud of smoke, thoroughly used up, totally worn out, and loudly proclaiming "Wow! What a Ride!"
Tony
That was part of my canned answer when someone would say "Good Luck" to me.
Luck has nothing to do with it. It takes pure skill and determination was always my answer.
I have decided to modify that answer when someone says good luck about my up coming operation. In this case it will be pure skill by the entire team at the Cleveland Clinic and determination by me.
As you might have noticed I have a tendency to compare a lot of life lessons to running a marathon. When trying to complete a marathon I feel 90% is mental. Your perpetration, training and planning is important but your body is trying in every way to tell you to stop but your mind must convince your body to continue. In this case I have decided to take this operation to my advantage and come out of it stronger and better than before. The modern advantages of medicine will be used in this case to help fight off the disadvantage of getting older. We all know that as time marches on cells just don't replicate as they use to but In my case I will have a faulty valve replaced by a brand new one that will easily out live me.
I saw on the news this morning that a 91 year old woman had set a new record for completing a marathon at that age. My plan is not to break any records but after this operation I can now be the best that I can be. No more worrying about my heart. Just think what I can now accomplish without the distraction and use the 90% mental power to my advantage in all aspects of my life.
With one week left I will now transfer my thoughts to not the surgery and recovery but more so what what I want to do with myself when I am now better than ever. So much left to do. So many goals to set and mark off as time passes on.
Putting my thoughts down on paper for all interested parties to read has proven to be very theraputic. Not sure how it will work out on the other side but you can be sure I will not simply tell you that I walked around the block. I have had folks that I don't even know leave me messages of encouragement along with tidbits of advice.
One guy gave me a name of a book that he read that proved helpful, by the name of Living Life to the Full. I am not much of a book reader but this one is planned to be finished before my surgery. It is about a woman that had done many triathlons and always wanted to do the ultimate triathlon which is the Iron Man event. An Iron Man triathlon is started with a 2.4 mile swim in open water, 112 mike bike ride and finish with a 26.2 mile marathon. Her goal was to do that 8 months after her surgery. I completed an Iron Man event back in 2012 and did some calculations. My goal is to finish the Berlin Marathon 3 months after my surgery which is approximately 1/3 of what she was able to achieve. So in my mind that should be an achievable goal.
On the other side of the coin some coworkers gave me another book to read, called The Last Train to Paradise.
I love a good laugh and I am still laughing about this one.
It is a story about a rail system that was built down on the Florida Keys but I am sure I will not hurt anyone feelings if it simply remains on the coffee table as a conversation piece. It is somewhat appropriate since I always try to live my life to the fullest as if it was my Last Train to Paradise.
Here is quote that I do live by.
Hunter Thompson wrote: "Life should not be a journey to the grave with the intention of arriving safely in a pretty and well preserved body, but rather to skid in broadside in a cloud of smoke, thoroughly used up, totally worn out, and loudly proclaiming "Wow! What a Ride!"
Tony
Pure Skill and Determination
Pure skill and determination
That was part of my canned answer when someone would say "Good Luck" to me.
Luck has nothing to do with it. It takes pure skill and determination was always my answer.
I have decided to modify that answer when someone says good luck about my up coming operation. In this case it will be pure skill by the entire team at the Cleveland Clinic and determination by me.
As you might have noticed I have a tendency to compare a lot of life lessons to running a marathon. When trying to complete a marathon I feel 90% is mental. Your perpetration, training and planning is important but your body is trying in every way to tell you to stop but your mind must convince your body to continue. In this case I have decided to take this operation to my advantage and come out of it stronger and better than before. The modern advantages of medicine will be used in this case to help fight off the disadvantage of getting older. We all know that as time marches on cells just don't replicate as they use to but In my case I will have a faulty valve replaced by a brand new one that will easily out live me.
I saw on the news this morning that a 91 year old woman had set a new record for completing a marathon at that age. My plan is not to break any records but after this operation I can now be the best that I can be. No more worrying about my heart. Just think what I can now accomplish without the distraction and use the 90% mental power to my advantage in all aspects of my life.
With one week left I will now transfer my thoughts to not the surgery and recovery but more so what what I want to do with myself when I am now better than ever. So much left to do. So many goals to set and mark off as time passes on.
Putting my thoughts down on paper for all interested parties to read has proven to be very theraputic. Not sure how it will work out on the other side but you can be sure I will not simply tell you that I walked around the block. I have had folks that I don't even know leave me messages of encouragement along with tidbits of advice.
One guy gave me a name of a book that he read that proved helpful, by the name of Living Life to the Full. I am not much of a book reader but this one is planned to be finished before my surgery. It is about a woman that had done many triathlons and always wanted to do the ultimate triathlon which is the Iron Man event. An Iron Man triathlon is started with a 2.4 mile swim in open water, 112 mike bike ride and finish with a 26.2 mile marathon. Her goal was to do that 8 months after her surgery. I completed an Iron Man event back in 2012 and did some calculations. My goal is to finish the Berlin Marathon 3 months after my surgery which is approximately 1/3 of what she was able to achieve. So in my mind that should be an achievable goal.
On the other side of the coin some coworkers gave me another book to read, called The Last Train to Paradise.
I love a good laugh and I am still laughing about this one.
It is a story about a rail system that was built down on the Florida Keys but I am sure I will not hurt anyone feelings if it simply remains on the coffee table as a conversation piece. It is somewhat appropriate since I always try to live my life to the fullest as if it was my Last Train to Paradise.
Here is quote that I do live by.
Hunter Thompson wrote: "Life should not be a journey to the grave with the intention of arriving safely in a pretty and well preserved body, but rather to skid in broadside in a cloud of smoke, thoroughly used up, totally worn out, and loudly proclaiming "Wow! What a Ride!"
Tony
That was part of my canned answer when someone would say "Good Luck" to me.
Luck has nothing to do with it. It takes pure skill and determination was always my answer.
I have decided to modify that answer when someone says good luck about my up coming operation. In this case it will be pure skill by the entire team at the Cleveland Clinic and determination by me.
As you might have noticed I have a tendency to compare a lot of life lessons to running a marathon. When trying to complete a marathon I feel 90% is mental. Your perpetration, training and planning is important but your body is trying in every way to tell you to stop but your mind must convince your body to continue. In this case I have decided to take this operation to my advantage and come out of it stronger and better than before. The modern advantages of medicine will be used in this case to help fight off the disadvantage of getting older. We all know that as time marches on cells just don't replicate as they use to but In my case I will have a faulty valve replaced by a brand new one that will easily out live me.
I saw on the news this morning that a 91 year old woman had set a new record for completing a marathon at that age. My plan is not to break any records but after this operation I can now be the best that I can be. No more worrying about my heart. Just think what I can now accomplish without the distraction and use the 90% mental power to my advantage in all aspects of my life.
With one week left I will now transfer my thoughts to not the surgery and recovery but more so what what I want to do with myself when I am now better than ever. So much left to do. So many goals to set and mark off as time passes on.
Putting my thoughts down on paper for all interested parties to read has proven to be very theraputic. Not sure how it will work out on the other side but you can be sure I will not simply tell you that I walked around the block. I have had folks that I don't even know leave me messages of encouragement along with tidbits of advice.
One guy gave me a name of a book that he read that proved helpful, by the name of Living Life to the Full. I am not much of a book reader but this one is planned to be finished before my surgery. It is about a woman that had done many triathlons and always wanted to do the ultimate triathlon which is the Iron Man event. An Iron Man triathlon is started with a 2.4 mile swim in open water, 112 mike bike ride and finish with a 26.2 mile marathon. Her goal was to do that 8 months after her surgery. I completed an Iron Man event back in 2012 and did some calculations. My goal is to finish the Berlin Marathon 3 months after my surgery which is approximately 1/3 of what she was able to achieve. So in my mind that should be an achievable goal.
On the other side of the coin some coworkers gave me another book to read, called The Last Train to Paradise.
I love a good laugh and I am still laughing about this one.
It is a story about a rail system that was built down on the Florida Keys but I am sure I will not hurt anyone feelings if it simply remains on the coffee table as a conversation piece. It is somewhat appropriate since I always try to live my life to the fullest as if it was my Last Train to Paradise.
Here is quote that I do live by.
Hunter Thompson wrote: "Life should not be a journey to the grave with the intention of arriving safely in a pretty and well preserved body, but rather to skid in broadside in a cloud of smoke, thoroughly used up, totally worn out, and loudly proclaiming "Wow! What a Ride!"
Tony
Time seems to stand still
Time seems to stand still
You always here the phrase, time flies when you are having fun but the opposite is true while waiting for you surgery date. With two weeks to go to AVR surgery these last 6 weeks seemed to have taken forever. I hope my recovery is not the same way. I like to make lists and I have a ton of thinks still to do but now seems like most of them are on the post operation side of the calendar. I really seem to worry about germs more so than usual. I understand that the operation could be postponed for a simple cold so I find myself washing my hands with sanitizer several times a day.
I am sure there is something I forgot to put on my list but I guess I will just have to punt if that happens. It is very strange for the first time in my life to have to prepare for several different senerioes. We all know what the possibilities could be but the one I am concentrating on is back to work in 8 weeks after the operation and running my 53rd marathon in 122 days from now. I am a very goal oriented person and I always have several goals set on the horizon. I feel without a goal you are aimlessly going through life. Some of them might be considered lofty and there has been only a few that I have not been able to achieve. When that has occurred I just adjust and move on. I have gotten a lot of support from family and friends and it will be an adjustment for me to have to relay on others but I am sure that will only be for a short period of time.
You always here the phrase, time flies when you are having fun but the opposite is true while waiting for you surgery date. With two weeks to go to AVR surgery these last 6 weeks seemed to have taken forever. I hope my recovery is not the same way. I like to make lists and I have a ton of thinks still to do but now seems like most of them are on the post operation side of the calendar. I really seem to worry about germs more so than usual. I understand that the operation could be postponed for a simple cold so I find myself washing my hands with sanitizer several times a day.
I am sure there is something I forgot to put on my list but I guess I will just have to punt if that happens. It is very strange for the first time in my life to have to prepare for several different senerioes. We all know what the possibilities could be but the one I am concentrating on is back to work in 8 weeks after the operation and running my 53rd marathon in 122 days from now. I am a very goal oriented person and I always have several goals set on the horizon. I feel without a goal you are aimlessly going through life. Some of them might be considered lofty and there has been only a few that I have not been able to achieve. When that has occurred I just adjust and move on. I have gotten a lot of support from family and friends and it will be an adjustment for me to have to relay on others but I am sure that will only be for a short period of time.
1136 days down and 4 weeks to go
136 days down and 4 weeks to go
With 4 weeks before surgery in preparation I have exercised at least 30 minutes each day this year. That is to this point 136 days straight.
Some have been a simple 15 minute pace walk and other days were a bit more complex. So far this year I have also done 2 marathons, 2 half marathons, 1 ten miler, and a 10K.
Several years back my New Years resolution was to exercise for at least 30 minutes each day for the entire year. Some days to get it done I started at 11:30 pm and continued to 12:30 am to get two days done.
This year started out as a challenge with some running friends as a 100 day challenge. When it was determined that I would require heart valve replacement surgery I decided to extend it to the day of surgery if I was able. If all goes well that will be 165 days. Sometimes I had to use my imagination and walk the terminals in different airports while waiting for my next flight.
I read in runners world magazine the other day where they compared running a marathon to open heart surgery. In both cases no one wants to hear the gory details. Since I have done 52 marathons so far this operation should be a piece of cake. NOT
One thing have learned from running marathons or raising three kids, expect the unexpected and be flexible when things do not go as planned.
I will keep both in mind before and after my AVR surgery.
With 4 weeks before surgery in preparation I have exercised at least 30 minutes each day this year. That is to this point 136 days straight.
Some have been a simple 15 minute pace walk and other days were a bit more complex. So far this year I have also done 2 marathons, 2 half marathons, 1 ten miler, and a 10K.
Several years back my New Years resolution was to exercise for at least 30 minutes each day for the entire year. Some days to get it done I started at 11:30 pm and continued to 12:30 am to get two days done.
This year started out as a challenge with some running friends as a 100 day challenge. When it was determined that I would require heart valve replacement surgery I decided to extend it to the day of surgery if I was able. If all goes well that will be 165 days. Sometimes I had to use my imagination and walk the terminals in different airports while waiting for my next flight.
I read in runners world magazine the other day where they compared running a marathon to open heart surgery. In both cases no one wants to hear the gory details. Since I have done 52 marathons so far this operation should be a piece of cake. NOT
One thing have learned from running marathons or raising three kids, expect the unexpected and be flexible when things do not go as planned.
I will keep both in mind before and after my AVR surgery.
Some Say I may be crazy
Some may say that I am crazy
People that know might even say that I am insane. I can surely tell that the wait for surgery is a bit much but this past Saturday a little more than 6 weeks out I finished my 52 Marathon. I feel that running keeps me sane. It seems to put things into perspective. The stresses from work and now this up and coming surgery seem to melt away when I am out breathing the fresh air and watching the world go by step by step.
There are numerous great running quotes out there and here is one that I saw recently that sticks with me.
You don't stop running because your old,
You get old because you stop running.
Dennis signed my guest book the other day and I can sure say that is a motto he lives by and will be my inspiration as I travel down this road.
Dennis is 76 with 35,000 miles and 23 marathons to his credit and looks forward to the day to run another marathon after he has fully recovered from his surgery. I have seen people with one leg, cancer survivors, and even one guy in a traditional wheel chair at running events.
I had a chance to speak to the gentleman in the wheel chair at the finish and I mentioned that he was such an inspiration and he turned the tables and said that mere fact keeps him going. I would have never thought of it that way. We all have our stories to tell and must admit this journal and reading the many others has truly helped.
Sometimes I worry that maybe I should have had the surgery done sooner rather than later but at the time I had so many ducks I wanted to get in a row and hope that the wait was worth it. I am sure that my case is somewhat unique in the fact that outside of the obvious sound of the murmur and regurgitation shown by the echocardiogram and even the buzzing sound I sometimes feel in my chest I have no outward symptoms. If like others, I found it difficult to climb a flight of stairs or get dizzy when I stood up then the answer would have been different when it comes to setting a date.
Only time will tell and by being a runner I am very in tune with my body and if I feel the slightest of changes then the date can easily be moved up. I might not be able to get the same surgeon that I have selected but I am sure anyone at the Cleveland Clinic will do a fine job. I fly airplanes as a profession and in my line of work it all comes down to trust. I am use to trusting others on a daily basis so in my mind this is no different.
45 days, 18 hours, 15 minutes and 12 seconds but who's counting.
People that know might even say that I am insane. I can surely tell that the wait for surgery is a bit much but this past Saturday a little more than 6 weeks out I finished my 52 Marathon. I feel that running keeps me sane. It seems to put things into perspective. The stresses from work and now this up and coming surgery seem to melt away when I am out breathing the fresh air and watching the world go by step by step.
There are numerous great running quotes out there and here is one that I saw recently that sticks with me.
You don't stop running because your old,
You get old because you stop running.
Dennis signed my guest book the other day and I can sure say that is a motto he lives by and will be my inspiration as I travel down this road.
Dennis is 76 with 35,000 miles and 23 marathons to his credit and looks forward to the day to run another marathon after he has fully recovered from his surgery. I have seen people with one leg, cancer survivors, and even one guy in a traditional wheel chair at running events.
I had a chance to speak to the gentleman in the wheel chair at the finish and I mentioned that he was such an inspiration and he turned the tables and said that mere fact keeps him going. I would have never thought of it that way. We all have our stories to tell and must admit this journal and reading the many others has truly helped.
Sometimes I worry that maybe I should have had the surgery done sooner rather than later but at the time I had so many ducks I wanted to get in a row and hope that the wait was worth it. I am sure that my case is somewhat unique in the fact that outside of the obvious sound of the murmur and regurgitation shown by the echocardiogram and even the buzzing sound I sometimes feel in my chest I have no outward symptoms. If like others, I found it difficult to climb a flight of stairs or get dizzy when I stood up then the answer would have been different when it comes to setting a date.
Only time will tell and by being a runner I am very in tune with my body and if I feel the slightest of changes then the date can easily be moved up. I might not be able to get the same surgeon that I have selected but I am sure anyone at the Cleveland Clinic will do a fine job. I fly airplanes as a profession and in my line of work it all comes down to trust. I am use to trusting others on a daily basis so in my mind this is no different.
45 days, 18 hours, 15 minutes and 12 seconds but who's counting.
Does anyone ever wonder why
Does anyone ever wonder why
One of the thoughts that always comes to mind is why me.
Is there something that I could have done differently or in other words is it something I did in the first place.
We often look at heredity as a factor in longevity and for me my father suffered a heart attack in his 70's and is still alive at 93. My mother passed away at 89 last year from cancer and had an Aortic aneurism in her abdomen in her 70's.
One thought for me was that I had an aneurism in my descending aorta which might have caused the problem with the aortic valve. Closer look by the folks at the Cleveland Clinic is that for my size, 6 foot 6, that just might be normal for me. Hopefully when the have the hood open they can take a closer look and do some patch work if necessary.
Even earlier in this process I went through a battery of test for Marfan Sydrome. That was also brought on by my height and the fact that I am often referred to as lanky. Those test are somewhat subjective but came back negative. Once again a closer look might provide more insight.
During my Iron Man competition in Louisville Ky the swim portion was in the Ohio River and 3 months later I noticed a sore on my scalp that was later to be diagnosed as MARSA skin infection. Infections have been known to cause valve problems but we have no direct proof that was he cause even though the first indication of the murmur was noticed 5 months later.
Last but not least is the amount of endurance events I have participated in. Am I simply blowing out my valve. No one has told me to stop running but I must admit I no longer do long runs while training for a marathon. I have done so many I feel that 8 miles is far enough in preparation. I actually took two months off from all exercise after my 50th Marathon last October and I felt terrible. Still no symptoms but I seemed to obsess over my condition and was on a downward spiral mentally. January 1, I took part in a 100 day challenge where a group of us decided to exercise for at least 30 minutes each day for 100 days. The 100 days were up earlier this month but decided to keep going until the day of my operation. I had once done an entire year several years back. I feel great but I guess the answer why might not ever be answered.
One of the thoughts that always comes to mind is why me.
Is there something that I could have done differently or in other words is it something I did in the first place.
We often look at heredity as a factor in longevity and for me my father suffered a heart attack in his 70's and is still alive at 93. My mother passed away at 89 last year from cancer and had an Aortic aneurism in her abdomen in her 70's.
One thought for me was that I had an aneurism in my descending aorta which might have caused the problem with the aortic valve. Closer look by the folks at the Cleveland Clinic is that for my size, 6 foot 6, that just might be normal for me. Hopefully when the have the hood open they can take a closer look and do some patch work if necessary.
Even earlier in this process I went through a battery of test for Marfan Sydrome. That was also brought on by my height and the fact that I am often referred to as lanky. Those test are somewhat subjective but came back negative. Once again a closer look might provide more insight.
During my Iron Man competition in Louisville Ky the swim portion was in the Ohio River and 3 months later I noticed a sore on my scalp that was later to be diagnosed as MARSA skin infection. Infections have been known to cause valve problems but we have no direct proof that was he cause even though the first indication of the murmur was noticed 5 months later.
Last but not least is the amount of endurance events I have participated in. Am I simply blowing out my valve. No one has told me to stop running but I must admit I no longer do long runs while training for a marathon. I have done so many I feel that 8 miles is far enough in preparation. I actually took two months off from all exercise after my 50th Marathon last October and I felt terrible. Still no symptoms but I seemed to obsess over my condition and was on a downward spiral mentally. January 1, I took part in a 100 day challenge where a group of us decided to exercise for at least 30 minutes each day for 100 days. The 100 days were up earlier this month but decided to keep going until the day of my operation. I had once done an entire year several years back. I feel great but I guess the answer why might not ever be answered.
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